Critical Congenital Heart Disease Newborn Screening Demonstration Program
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a) Enhancing and expanding the capacity of state and local public health agencies and hospitals in the process of providing screening, counseling, follow-up check-ups, performing necessary quality assurance, outcome analysis, as well as other public health surveillance functions.

b) Assisting in the process of providing health care professionals and newborn screening program personnel with ample education and knowledge on appropriate newborn screening practices, as well as on emerging technologies intended for critical congenital heart diseases.

c) Developing and administering educational programs that focus on critical congenital heart disease newborn screening, counseling, testing, follow-up, management, and treatment.

d) Establishing, sustaining, and operating a system that could coordinate and evaluate screening programs and follow-up check-ups with regards to critical congenital heart disease patients.

The Health Resources and Services Administration is willing to administer a total amount of $7,000,000 to be equally divided into seven different grant awardees.

The institutions and administrations who will be considered eligible to submit an application under this program are states or political subdivisions of a state, a consortium of two more states, a health facility, or any other entity that possess sufficient expertise in newborn screening.


Critical Congenital Heart Disease Newborn Screening Demonstration Program
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Additional Resources

category - Health Grants

Excellence in Hemoglobinopathies Research Award Program
The National Institutes of Health has formed a collaboration with the National Heart, Lung, and Blood Institute (NHLBI) in an effort to establish the Excellence in Hemoglobinopathies Research Award Program wherein both agencies have agreed to financially support the creation of studies that could potentially improve high-impact multi-disciplinary basic and translational research studies in the hemoglobinopathies.

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Behavioral Risk Factor Surveillance System
The Centers for Disease Control and Prevention has established the Behavioral Risk Factor Surveillance System Program wherein it intends to provide financial and programmatic assistance to State Health Departments in the process of maintaining and expanding ways of collecting pertinent health data.

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Clinical Trials for Organ Transplantation in Children Program
The National Insitutes of Health has formed a partnership with the National Institute of Allergy and Infectious Diseases (NIAID) to establish the Clinical Trials for Organ Transplantation in Children Program wherein both agencies intend to support a group of investigators in their quest of conducting clinical trials regarding pediatric solid organ transplant recipients.

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National Science Foundation's Smart Health and Wellbeing Program
The National Science Foundation has constituted the development of the Smart Health and Wellbeing (SHB) Program wherein they intend to address scientific and technical issues that would pave the way towards the transformation of the healthcare process from being rather reactive and hospital centered into becoming preventive, proactive, evidence-based, patient-centered and focused on the wellbeing of the person rather than his/her disease.

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